Join us, April 21, 2021 – The ABCs of Clinical Trials for the CDG and NGLY1 Community is not able to accept additional registrations at this time, but we will be streaming using YouTube Live at the Putting Rare Diseases Patients First! YouTube Channel located HERE.
We will start streaming on Wednesday, April 21st at 8:00am PDT / 11:00am EDT / 4:00pm GMT. We look forward to offering this very informative webinar to our Community!
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May 16th – Congenital Disorders of Glycosylation (CDG) Awareness Day!
What will YOU be doing on May 16th? JOIN the Campaign to Support World Congenital Disorders of Glycosylation (CDG) Awareness Day! Go green, spread the word, plan an event, share knowledge, hold a fundraiser, or volunteer with the Campaign!
May 16th is World Congenital Disorders of Glycosylation (CDG) Awareness Day! This day is designed to raise awareness and increase knowledge about CDG. Check out the State Map to see when your Governor officially proclaims May 16th as CDG Awareness Day in YOUR State!
If you are interested in planning an awareness event on or around May 16, 2017, please send an email with your event information to worldcdgawareness@gmail.com. To access and download the complete toolkit containing social media materials, event maps, handprints, educational and press kit resources, please visit World CDG Awareness Day Campaign!
SAVE THE DATE… February 28-March 1, 2020 for the upcoming CDG Scientific and Family Conference to be held in San Diego, CA! Stay tuned for a Tentative Agenda, Program Details and Registration opportunities to be released in July 2019! We are currently seeking support from our engaged Community partners to serve as Conference Sponsors! Please CLICK HERE to learn more about our 2020 Conference Sponsorship Opportunities a help promote the exchange of education, resources and therapeutic approaches for children and adults affected by CDG.
