May 16th is World Congenital Disorders of Glycosylation (CDG) Awareness Day!
The first World CDG Awareness Day was officially recognized on May 16, 2016.
And in an effort to continue to raise CDG & NGLY1 Awareness around the globe; each year CDG CARE launches a 2-month campaign leading up to May 16th to promote resources, advocate for awareness, support events, advance research and raise funds to support families that will help to improve the lives of children and adults diagnosed with CDG & NGLY1.
This is a day that we come together globally and send the message of CDG Awareness and the bond we all share, that despite these uncertain times, we will never lose HOPE!
We are proud to share that through our CDG Community fundraising efforts we have raised $1.3 million dollars and funded >$675,000 in research projects to advance the diagnosis and treatment for all CDGs! By Standing United for CDG, we have also been able to assist 47 CDG & NGLY1 families with >$112,500 in direct patient financial assistance. Our community has so much to look forward to on the horizon, so we encourage you to join this annual effort to raise CDG awareness and funds to advance CDG & NGLY1 research, therapies, and treatment strategies that will improve the lives of children and young adults diagnosed with CDG.
We hope that this next May 16th, you will join our efforts to raise CDG Awareness in your Community and Nationwide! We encourage everyone to participate because spreading the word helps us spread awareness for CDG!
