May 16th is World Congenital Disorders of Glycosylation (CDG) Awareness Day!
The first World CDG Awareness Day was officially recognized on May 16, 2016.
And in an effort to continue to raise CDG & NGLY1 Awareness around the globe; each year CDG CARE partners with the World CDG Organization to launch a 2-month campaign leading up to May 16th to promote resources, support events, advance research and raise funds to support families that will help to improve the lives of children and adults diagnosed with CDG & NGLY1.
This is a day that we come together globally and send the message of CDG Awareness and the bond we all share, that despite these uncertain times, we will never lose HOPE!
We are proud to share that through our CDG Community fundraising efforts we have currently funded $200,000 in research projects, $30,000 in family travel scholarships and $18,000 to our fellow CDG Patient Associations to collaborate and support their initiatives.
We hope that this next May 16th, you will join our efforts to raise CDG Awareness in your Community and Nationwide! We encourage everyone to participate because spreading the word helps us spread awareness for CDG!