2022 Rare Disease Day Symposium and CDG/NGLY1 Family Conference! On behalf of the CDG Community and Sanford Burnham Prebys, the 2022 CDG/NGLY1 Scientific and Family Conference was held February 25-27, 2022 in San Diego, California. Featuring 35 captivating presentations from a diverse panel of experts, 102 medical professionals and 34 families united to support and enhance CDG & NGLY1 research, knowledge, therapeutic and alternative treatment strategies. The conference sessions were recorded and the 2022 CDG & NGLY1 Education Miniseries is now featuring episodes on the CDG CARE YouTube Channel.
2020 CDG Scientific and Family Conference! The 2020 CDG Scientific and Family Conference was held February 28 – March 1, 2020 in San Diego, CA.
CDG CARE is delighted to share that through an independent educational grant from Cerecor, Inc. and prepared by the amazing production team at MedEd on the Go, all of the 2020 CDG Family Conference sessions were recorded and the post-conference video program is NOW available on the CDG CARE YouTube Channel.
We hope that these videos are a helpful resource to our families as we move into a world of telehealth and online educational opportunities. CDG CARE is here to help our CDG Community navigate through the management of common CDG issues and questions, and will continue to collaborate to provide resources, education and research opportunities to advance the health and well-being of all families affected by CDG.
As always, we hope everyone enjoys viewing and sharing the 2020 “Best Moments” video clip below!
