Congenital Disorders of Glycosylation: a rare inherited metabolic disorder affecting a complex enzymatic process.

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CDG CARE Newsletter

March 14, 2020 By CareCDG

Welcome to our Newsletter!

Volume 19
Volume 18
COVID19 News & Updates: Click HERE
Volume 17
Volume 16
Volume 15
Volume 14
Volume 13
Volume 12
Volume 11
FCDGC Holiday Newsletter
Volume 10
Volume 9
Volume 8
Volume 7 (pdf)
Volume 6 (pdf)
Volume 5 (pdf)
Volume 4 (pdf)
Volume 3 (pdf)
Volume 2 (pdf)
Volume 1 (pdf)

Filed Under: News and Events

Family Support Network

The CDG CARE Family Support Network has been created to help families connect and stand united to advance research and resources for all CDGs. Register today to join our network and make your voice heard for everyone affected by CDG.

Donate to CDG Care

With your gift we can support families, develop programs, promote education and advocate for research, therapies and treatments for CDG.
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WHAT IS CDG CARE?

CDG CARE promotes greater awareness and understanding of Congenital Disorders of Glycosylation (CDGs), provides information and support to families affected by CDG, and advocates for and funds scientific research to advance the diagnosis and treatment of CDGs.
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May 16th is celebrated each year as World CDG Awareness Day! We hope you enjoy and share this inspirational video reflecting the patients, families and communities celebrating together around the globe!

2022 CDG & NGLY1 Family Conference

Video capturing the Best Moments from our most recent 2022 CDG/NGLY1 Scientific and Family Conference in San Diego, CA

This event was held February 25 - 27th in San Diego, CA. The conference sessions were recorded and the CDG & NGLY1 Education Miniseries is now featuring episodes on the CDG CARE YouTube Channel.

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