To view the latest edition of the CDG CARE E-Newsletter Click HERE
Research Opportunity for all GPI Anchor Disorder Patients and Families!
A new patient registry has been designed and launched to collect vital data from all patients diagnosed with CDG types under the classification of GPI Anchor Deficiencies. Valid and reliable data is crucial to advancing drug therapies and development. Through this registry, and the collection of patient-reported data from families around the globe, the GPI Anchor Disorder community will be one step closer to making treatments a reality. To learn more and participate in this 15-60 minute survey, Click HERE or on the image below:
Patient Driven CDG Research Initiatives Underway!
As part of CDG CARE’s effort to advance and diversify patient-led research in the field of CDGs, we now offer Fiscal Sponsorship Opportunities for well-defined and collaborative research projects. We are delighted to share that research programs have been launched in several areas including PIGA-CDG, PIGS-CDG, PIGN-CDG, PIGW-CDG, GMPPA-CDG and ALG8-CDG!
To learn more about the projects that are currently underway, simply click on the links below:
