Congenital Disorders of Glycosylation: a rare inherited metabolic disorder affecting a complex enzymatic process.

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August 3, 2021 By CareCDG

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Growth Chart Survey

Help our researchers gather as much data as we can from our patient community to create specialized growth charts that can be used by families and clinicians as a reference to track and monitor growth of children diagnosed with CDG & NGLY1-deficiency.

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The CDG CARE Family Support Network has been created to help families connect and stand united to advance research and resources for all CDGs. Register today to join our network and make your voice heard for everyone affected by CDG.

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WHAT IS CDG CARE?

CDG CARE promotes greater awareness and understanding of Congenital Disorders of Glycosylation (CDGs), provides information and support to families affected by CDG, and advocates for and funds scientific research to advance the diagnosis and treatment of CDGs.
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May 16th is celebrated each year as World CDG Awareness Day! We hope you enjoy and share this inspirational video reflecting the patients, families and communities celebrating together around the globe!

2022 CDG & NGLY1 Family Conference

Video capturing the Best Moments from our most recent 2022 CDG/NGLY1 Scientific and Family Conference in San Diego, CA

This event was held February 25 - 27th in San Diego, CA. The conference sessions were recorded and the CDG & NGLY1 Education Miniseries is now featuring episodes on the CDG CARE YouTube Channel.

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