CDG CARE is delighted to feature the first in a series of patient education webinars for our CDG/NGLY1 Community. In partnership with Putting Rare Diseases Patients First!®, a 501(c)(3) nonprofit charity, this first 2-hour, interactive event is titled: The ABCs of Clinical Trials for the CDG/NGLY1 Community. REGISTRATION IS NOW CLOSED, but you can watch the Webinar Streaming LIVE on YouTube by CLICKING HERE!
Designed for participants to hear from the experts about the latest approaches to treating and studying CDGs & NGLY1...
Professor of Medical Genetics,
Editor in Chief, Journal of Inherited Metabolic Disease
Human Genetics & Metabolism,
Children's Hospital of Philadelphia
Seattle Children's Hospital
Assistant Professor, Department of Pediatrics, University of Washington School of Medicine
Founder & President, Putting Rare Diseases Patients First!
We encourage you to provide your information below to stay in touch and receive notices about future CDG CARE educational programs!
Thank you. We will be in touch again soon.
This program is made possible by a generous grant from Travere Therapeutics.