Bella Angel Memorial Program

The Bella Angel Memorial Program celebrates the lives of those we have lost to NGLY1 and CDG, remembering their strength, resilience, and the profound love they brought into this world. Named after Isabella “Bella” Conneran, whose short but impactful life advanced the understanding of CDG, this program is dedicated to honoring all CDG angels and creating a brighter future for the CDG community.

In collaboration with medical professionals worldwide, the program is not only a tribute to our angels but also a platform for learning and research. By studying the experiences of angel families, we hope to gain deeper insights into the challenges they have faced, paving the way for improvements in support services, resources, and clinical outcomes.

By learning from these families, we can drive meaningful change for those still affected by CDG.

Together, we can make a difference.

Enroll today to join our mission to honor and learn from our CDG angels. Let’s continue to celebrate the lives of those we have lost and work toward a brighter future for all those affected by CDG.

"*" indicates required fields

X/Twitter

This field is for validation purposes and should be left unchanged.

Please select your relationship to the CDG Angel you are enrolling:*

Your Name*

First Last

Your Email*

Your Phone*

Your Address*

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Are you willing to be contacted to participate in the collection of data for future research studies?*

Please provide the Name of your CDG Angel:*

First Last

Please provide the Date of Birth of your CDG Angel:*

Please provide the Date of Passing of your CDG Angel:*

Please provide the Cause(s) of Death, if known (Optional):

Please list any specific Virus(es) leading up to your CDG Angel's passing, if known (Optional):

Please provide the Gender of the CDG Angel:*

Please select your CDG Angel’s CDG Type from the list provided:*

Please provide the Name of each Primary Medical Center/Hospital where you sought treatment for CDG related issues:*

Please provide the Name of each Hospital where you primarily sought Emergency Room services:*

Please provide the Name of the Physician who served as the Primary Contact over your CDG Angel’s medical oversight and care:*

Please select the Type of Specialty of the Primary Physician Contact listed above:*

If applicable, please provide the Name of the CDG Specialist who served as the Primary Contact for CDG related oversight and care (Optional):

Please include my CDG Angel in Memorial Displays:*

CAPTCHA