To view the latest edition of the CDG CARE E-Newsletter Click HERE
*NEW* – CDG CARE expands opportunities to advance patient-driven research models! To learn more about our new Fiscal Sponsorship Program offering, Click HERE.
COVID-19 News & Updates: Click HERE
Frontiers in CDG Consortium
The Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is one of 20 federally funded rare disease Consortia with the aim to advance medical research by providing support for clinical studies and facilitating collaboration, study enrollment and data sharing. To learn more about this groundbreaking research advancement for the CDG Community, CLICK HERE to visit our Research Page! You can also visit the FCDGC website by CLICKING HERE.
We are also delighted to share that through the support of the NIH funded FCDGC, the following patient educational booklets are now available to our community:
*NEW – GPI Anchor Disorders: A Subtype of Congenital Disorders of Glycosylation (CDG)
Congenital Disorders of Glycosylation (CDG)
Caring for Your Child with CDG
A Message for Parents of Children with CDG
CDG Connect Patient Insights Network (PIN)
CDG CARE is proud to partner with the Invitae Patient Insights Network (PIN) and CDG Canada to offer the first international CDG Patient Registry – CDG Connect! CDG Connect serves as the centralized global network for CDG patients, researchers and drug developers to amplify the voice of CDG patients and optimize the search for better treatments.
CLICK HERE to enroll in CDG Connect TODAY! Share your experiences, access data and insights and advance research for CDG. Together, we can build the CDG Connect Community!
